“Inspire and learn from each other” – by Agata @BeatingMyMS

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It was freezing in New York so we decided to go somewhere even colder: Vail, Colorado. A beautiful place with high altitude that I didn’t mind at first. Few days in, we went snowmobiling. It was fun, but my anxiety skyrocketed. The night we got home from the trip, my forehead started burning. I thought it was  a cold, so I went to bed with some Nyquil. Next day, I woke up and I couldn’t  hear anything in my left ear. I thought it was an aftereffect from the high altitude and flight. My annual doctor’s visit was due, however she didn’t find anything strange. The ear specialist she recommended didn’t have answers either. Leaving the office, I asked if I could get an MRI because my dad passed away a few years before from brain cancer.. Next thing I know the doctor calls and tells me on the phone that my MRI results came back and I should see a neurologist because it’s probably MS. I was like what? Multiple Sclerosis? Can you spell that for me so I can write it down?

I grew up in a small village in Transylvania, Romania. Moved to New York by myself when I was 21. I didn’t speak a word of English and I never heard about “Multiple Sclerosis” in my life. You can imagine what happened when I googled it. My life (I thought at that time) collapsed. The only good thing I kept telling myself is that it’s better than cancer, I will die sooner, but at least I’ll live for a while.  

It felt like forever while I was trying to get an appointment with (any) neurologist. When I finally saw the doctor, she confirmed that I have MS. The other 2 doctors did also. I didn’t realize that doctors don’t like it when patients go for second opinions, but I just couldn’t believe it. The good news was that my spine MRI came back and there were no lesions. By that time, I listened to the Wahls Protocol book which opened my eyes about how unhealthy my lifestyle was in the past few years.

The strangest thing was that I felt fine. My hearing came back after the steroid treatment and the numbness was almost gone. I went to see a therapist which helped with my anxiety. I started taking Vitamin D to increase my level, which was 23 at the time of my diagnosis. I didn’t know how important Vitamin D was. Now that I look back, it seems like I didn’t know a lot of things … 

The first neurologist told me that if I don’t get on medication right away, I might end up in a wheelchair in a few months. This was in 2019, 5 days before my 35th birthday. We wanted to start a family and I needed some time to learn about this disease. So I spent the next few weeks listening and reading most books published on autoimmune disease and as a result, I changed my diet completely. 10 months later my son was born and 20 months later we welcomed our daughter.

MS taught me so much:  the  importance of family, to appreciate every day and every moment. It also taught me to take care of myself and listen to my body. To put myself first… if I want to take care of others, I need to take care of myself. When I left the hospital after my MRI, I saw a sign on the street that said “beating cancer”. I took it as a sign and I promised myself that I will beat MS. That day I created a new (anonymous) instagram account (@beatingmyms) to share my story.   Most importantly to make myself accountable and to remind myself that I need to stick to this plan. Some of my friends still don’t know that I have MS. They don’t know what I’m struggling with and I know, they will never understand. If you just met me, you won’t believe that I have MS. Sometimes I still don’t believe it. As weird as it sounds, I’m thankful that I was diagnosed “early” because I feel like I got a second chance and hopefully the things I do every day will slow down the progression.

I’m a stay-at-home mom and work-from-home graphic and web designer these days. Sometimes struggling with brain fog and anxiety, but overall I’m one of those fortunate ones who bounce back after minor relapses like face numbness and muscle weakness. The best advice I got early on from one of my instagram friends is to find a functional medicine practice. This led me to start the Autoimmune Protocol Diet. These are the best two pieces of advice I can give anyone newly diagnosed: see a functional medicine doctor and change your diet. Another important piece of advice would be to listen to your body and your gut. Literally. Don’t rush into any decision from fear. Research, learn, take a deep breath, meditate, go for a walk, get some sunshine and take a deep breath again. 

When I was diagnosed I didn’t know that multiple sclerosis would give me a purpose. I knew it would change my life, but I never thought that I would be thankful for that. I’m sharing my story, my journey because I want to raise awareness and find a cure. I created this website so we can all inspire and learn from each other, to find some answers and hopefully help you live a better life with MS. Thank you for reading my story and thank you for joining this community!


Things I do to manage My MS

  1. Meditate
  2. Take my supplements
  3. Fill out my journal
  4. Drink 8 glasses of water
  5. Follow my diet
  6. Go for a walk
  7. Stretch / Yoga
  8. Go to bed earlier

Favorite Books:
All of them are linked here: https://mymspear.com/books/

Favorite Diet:
Autoimmune Protocol Diet

Agata @BeatingMyMS

Instagram: @beatingmyms